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Walk to Make Cystic Fibrosis History

Cystic fibrosis is the most common fatal genetic disease among Canadian children and young adults
cystic fibrosis walk WALK2016
The Walk to Make Cystic Fibrosis History takes place this Sunday. Submitted photo.

This Sunday, May 28, Cystic Fibrosis Canada’s North Bay Chapter will host the Walk to Make Cystic Fibrosis History starting at the Kiwanis Bandshell heading into Lee Park, and back to help raise funds for critical cystic fibrosis (CF) research and care.

“Lace up, hit the pavement, and lead the way in the fight against CF,” said Macrina Perron, walk spokesperson. “A simple act can go a long way. By joining the walk or sponsoring a participant, together we can make strides in making CF history."

Cystic fibrosis is the most common fatal genetic disease among Canadian children and young adults. There is no cure. In the 1960s, most Canadian children with CF did not live long enough to attend kindergarten. Now, the median age of survival of Canadians with CF is among the highest in the world at 52.1 years. We have come a long way, but, at present there is no cure or control for cystic fibrosis and according to the most recent data of the patients who lost their battle to CF, half were under 32 years of age.

The Walk to Make Cystic Fibrosis History will host thousands of participants in over 65 locations across the country. The walks take place every May during Cystic Fibrosis Awareness Month, when Cystic Fibrosis Canada raises awareness about the disease and raises funds for vital CF research, care and advocacy initiatives.

EVENT:          The Walk to Make Cystic Fibrosis History

DATE:            Sunday, May 28, 2017

TIME:             Registration-9am. Opening Ceremonies-10am. Walk starts at 10:30

LOCATION:     Kiwanis Band shell/Kate Pace Way.

WEBSITE:     To register and/or make a donation, please visit cysticfibrosis.ca/walk.

Cystic fibrosis is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus also builds up in the digestive tract, making it difficult to digest and absorb nutrients from food. As improved therapies have helped to address the malnutrition issues, ultimately most deaths related to cystic fibrosis are due to lung disease.